Did you know there are over 7,000 known rare diseases? Follow our narrator, Effie, as she uses the alphabet to explain 26 rare diseases in a scientifically accurate, but easy to understand, way.
Featured rare diseases include: Aicardi Syndrome, Baraitser Winter Syndrome, CDKL5 Deficiency Disorder, Desanto-Shinawi Syndrome, Ectodermal Dysplasia, FOXG1 Syndrome, Glycogen storage disease, Hemimegalencephaly, Infantile Bullous Pemphigoid, Joubert Syndrome, Kabuki Syndrome, Leukodystrophy/Leuden Syndrome, Moebius Syndrome, Non-ketotic hyperglycinemia, Osteogenesis Imperfecta, Prader Willi Syndrome, 22Q13- Phelan McDermid Syndrome, Russell Silver Syndrome, Sanfilippo Syndrome, Tuberous Sclerosis Complex, undiagnosed, Vein of Galen Malformation, Wolf Hirschhorn Syndrome, Xia-Gibbs Syndrome, PYROXD-1, and Zimmerman Laband syndrome.
Rare Disease from A to Z is the second book in the series by Simply Comply Stories. By presenting medical diagnoses and disabilities in a relatable but accurate way, Simply Complex Stories equips children (and adults) with empathy and understanding, fostering a more inclusive world. Learn more at simplycomplexstories.com or by following along on Instagram at @simplycomplexstories
A simple explanation of the complex world of epilepsy. Follow our little narrator, Effie, as she explores what epilepsy is, why it happens, and what can be done about it. Written by a parent of a child with severe epilepsy and reviewed by pediatric neurologists, pediatricians, parents of children with epilepsy, and adults impacted by epilepsy to ensure information is not only medically accurate, but inclusive of the epilepsy community.
What is Epilepsy: A Simply Explanation of a Complex Diagnosis is the first book in the series by Simply Comply Stories. By presenting medical diagnoses and disabilities in a relatable but accurate way, Simply Complex Stories equips children with empathy and understanding, fostering a more inclusive world. Learn more at simplycomplexstories.com or by following along on Instagram at @simplycomplexstories
A simple explanation for the complex diagnosis of Cerebral Palsy. Follow our little narrator, Effie, as she explores what CP is, why it happens, and how we can be more inclusive of disabilities in general. Disabilities are a normal part of life; let's learn more so we can be better friends!